Welcome to Connective Collective
A welcoming community for people living with connective tissue disorders.
We’re excited to finally begin sharing the journey of building Connective Collective.
What started as conversations between people who understand the challenges of living with connective tissue disorders has grown into a vision for something much bigger: a welcoming community where patients, caregivers, healthcare professionals, advocates, and allies can learn, connect, and support one another.
Connective Collective is part of Verdade, a nonprofit initiative dedicated to building trusted communities grounded in honest education, authentic connection, and compassion.
We’re still in the early stages, and that’s part of the excitement. Over the coming months, we’ll be working toward nonprofit status, developing educational resources, building partnerships, and creating a trusted space where meaningful conversations can happen.
Our goal is simple: to help ensure that no one has to navigate these complex conditions alone.
Along the way, we’ll be sharing updates on our progress, educational content, community stories, and opportunities to get involved. Whether you’re living with hypermobile Ehlers-Danlos syndrome, another connective tissue disorder, POTS, dysautonomia, or you’re supporting someone who is, we’re glad you’re here.
Thank you for joining us at the very beginning. Every community starts with a single step, and we can’t wait to see what we can build together.
Welcome to Connective Collective. This is just the beginning.
About Verdade
Connective Collective is an initiative of Verdade, a nonprofit organization in development focused on creating trusted communities, advancing education, and connecting people affected by connective tissue disorders through compassion, collaboration, and truth.